We ended up getting Nathan home and things were hard for about 2 weeks. Every diaper change, every time he even THOUGHT we were going to change his diaper, he would start to get anxious and cry. The diaper changes were painful for him. We managed through them though, and by the end of the time he had the tube in we'd start getting the 2nd diaper on him and we'd go "all done" and he'd instantly stop crying and go "all done" himself. Very cute, but always heartbreaking.
He immediately started to potty train after the tube was taken out and he is a Potty Training CHAMP!!! He is peeing in the potty very well, he's wearing underwear all day when he's home and he rarely has an accident. The only thing we can't seem to get him to pick up on, doing stinky in the potty. Once we get him to understand he has to do that in there, he will be potty trained completely. But right now he's got his potty jar (treats when he goes) and a pile of underwear he loves to wear, and he's happy.
Both Nathan and Noah had appointments with orthopedics ... we were told by the kids Ped that Nathan's records say that his Ortho in WI said he had Scoliosis... and then the radiologist based on the x-ray said he did not. So I was all confused. Good news is, third opinion .... he has a nice, straight back... no scoliosis. 2 against 1.... I'm removing it from his diagnosis list. However, Cal does have it.... phhhh ... Noah's tone issues are still really bad. She said she doesn't see any point in casting this feet because she was sure it really wouldn't solve the problem. This goes beyond tone issues in his feet and ankles, and lower legs. He has pretty bad tone issues from his hips down. She also noticed that he had the shorter leg without even measuring him. So she wants him to see the skeletal dysplasia team. They also want Nathan seeing them for his tone issues, where Noah is extremely stiff, Nathan is super flexible. They also want Nathan to see the Neurodevelopment team because of his speech issues.
As for Nathan's HGH shots, he's doing really good. He knows he has to have that before bed, so he asks for it some nights. This one night, he shocked me! He saw that I had the easypod out warming up, and he comes up to me, he crawls up on my lap, reaches over, next thing I know he has the paper backing off the needle container and is handing it to me. LOL... apparently he was ready for it. So I ask him, and then he gets up on his Dad's chair and leans over the back of it.....assuming the position!! So I asked Calahan to come take pictures because I know some friends and family have asked. Now, we have to give it to him in his bottom because that's the only place that he's got enough fat build up so .. I blocked out some of it ... but here he is that night...
Here he is assuming the position ... he actually started to take off his clothes when I wasn't moving fast enough