Thursday, July 3, 2014

First Week Home........

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FB (June 28):  Nate hanging out this morning. .... He still won't walk so we are going to work on that later a little bit. Right now he is watching Minecraft videos on YouTube and eating strawberries, watermelon, and cheese. ...

The other kids got to go to a birthday party for Calahan's Fiancee's brother (and his Fiancee and her sister, I thought it was just for her brother or I would have sent her gifts with him.)  Nate got to stay at home.

Not that he minded!  

We got cleaned up and changed.....  


 The boy and his Pup ....   they love each other :)   See them holding "hands" ...

 So the boys fundraiser is just not going very well.   :(  

 I used to make these all the time in highschool...  and I thought the kids would get a kick out of them.  They are Yo-Yo balloons.  

FB (June 30):  Nathan actually ate apple sauce today!! HUGE -he tried it and liked it and ate some. However, he has refused anything of real substance today. He had watermelon, he's had applesauce, popsicle, ice cream, and chocolate milk... I've offered toast, sandwiches, eggs (which he refused, a good thing, cuz I found out we have none) ... I wonder if his tummy is upset 



On June 29th .... I did an order for the STARTER KIT through Patchwork Peddler....  We ordered some samples ...  and were happy with them (that's what Nate has been using).   But we only have three samples.  So we're trying to use them and doing gauze inbetween....   I am washing them by hand also - which took some getting use to - since they were air drying (we don't have a washer and dryer) ...  they were hard and crusty - so we used fabric softner only to be told NOT to because it will start to repel instead of absorb.  So I did a lot of research and FINALLY figured out a way to wash them and have them still be soft w/o using fabric softner.

Anyway - we ordered the patterns above.  The Mickey pattern is for the bag (pic below, the Noah's Ark one) .... and the rest of them are the patterns we ordered for the pads.

July 1st:  It was a warm day ... so the kids got to have some water fun!   Water Balloons & Water Cannon!




Noticed that Nathan's button is getting red and irritated :(   I taped the gauze on there over night, when I put just the tape on the gauze to keep it closed, it falls off :/

Called the DR the next day to see both Nathan and Kaedyn....  

He told me for Nathan - to start putting some barrier ointment on there (he gave me a sample) and to just keep an eye on it.   Kaedyn ... well.. he has strep throat!   Oye!

FB (July 2): Nathan is getting all irritated under his G-tube. .... took him in to get it checked out and doc wants us to change his pad more (going to have to use gauze and tape until we get more pads).... like 2 or 3 times during the day. ... And put ointment on it. ...

Someone came up with the bright idea of SUMMER SLEDDING!   The kids have a great hill right outside our apartment and a neighbor gave them some cardboard.....  hence SUMMER SLEDDING IS BORN!

FB (July 3):  My bubble Dino lover is in great mourning. He ask that all flowers and cards be sent to his home address and donations can be made to his GO FUND ME fundraiser or PayPal. ... And all media requests can go through his media consultant. ....

FB (July 3): Nathan got a new G-Tube Pad from his Grandma today!! Thanks GrandmaPhyllis!! He wanted to wear it right away tonight when we changed it :)

After SUMMER SLEDDING ...... this is how gross his pad was, and is that blood?  Oye....  oye oye oye...

Have a Happy 4th of July tomorrow!!!

Fireworks and Autism/SPD

. Any parent of a child with Autism or Sensory Processing Disorder (SPD) knows how difficult noises, especially loud unexpected noises, can be.  It's NOT FUN.   Add into that the factor of getting over stimulated, and a bunch of other factors that could totally send our kids with sensory issues over the edge, and it makes a day like 4th of July - that's supposed to be a ton of fun - just not fun at all.

I know that since Noah was born, we haven't gone to a live firework show since he started expressing sensory issues but a few times.   So that means in 12 years ... we've gone two or three times.   I can think of one off hand.

We usually try to get some of the smaller fireworks that we can do ourselves, sparklers, that sort of thing.  We do those.... but we can't always afford to do that.   Where we currently live, if you sit outside you can see a couple of different displays.  Sometimes not so well because of the trees, but some get high enough for the kids to really see well :)   So the kids who WANT to go outside and watch.   Noah is usually one of them, Nathan is not.  

On 4th of July, for Nathan, it's just like any other day.  We go over to Nana & Papa's for a BBQ and then home and do what we do normally including his bedtime.   The rest of the kids play outside and come in after fireworks.

So one of my really good friends ran into an issued with her SPD child ....  they were out and setting off bottle rockets.  Normally he loves that sort of thing but this year either he got overwhelmed or something.  The over stimulating caused him to go into major (the worst she'd ever seen him in) melt down mode.  It took hours to get him to calm down.

So that inspired me .....  I thought of several things to help make a day like Forth of July run a little smoother....  

that one didn't look real good on facebook so I made this one too ....


For more information and other ideas....  

She found this link...
4th of July and Dealing with Over-Stimulation 

And I found these links.....
Tips for an Autism Friendly 4th of July
Autism Ears, Loud Noises and Fireworks! – Oh, My!

Friday, June 27, 2014

Day 1 Home.....

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FB: Morning 1 at Home: Nathan is still crazy sore. He does NOT want to walk. Luckily his pain is at a 2 on the face pain scale (yay! - but I think he's talking about his general pain - and not when he tries to walk.) ... Last night he wanted to sleep in our room which was fine with us. He slept well. He woke up this morning and started to poke me (not moving of course - just poking my legs) ... and so I got up and asked him what he needed. He wanted to be moved out into the living room so he can play X-Box. So boy got what he wanted  Oh and Chocolate Milk is his magical elixir right now, it's keeping him drinking! So that's what he's been drinking. Kaedyn is really happy to have him home



Got the kids these crazy Popsicle for a treat.  The peel is fondant ...  they were weird.   But the kids liked them still....

Got all Nathan's cards on display!


FB:  We did his G-tube cleaning this morning (not his favorite thing for sure) and put a pad on for the first time (which he did not want any part of but convinced him to try it out just to see how it felt) and he likes it. ..



Thank You Everyone!!

. Thank you to EVERYONE who sent gifts and cards for Nathan!!!   Every single one is appreciated!!!












 All his cards up at home....  

His Cub Scout Pack made this card while we were at the hospital and missing an event....  they even got Chuck E Cheese to sign it!!






Picture of Chuck E Cheese signing Nathan's giant card!